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The latest news from The PSP Association.

PSP Solicitors Pedal Across Europe

The PSP Solicitors cross Europe to raise money for PSP

Tagged as: east midlands, , local


PSP Association challenges under-reporting in death certificates

Death certificates of those given a diagnosis of Progressive Supranuclear Palsy (PSP) rarely show PSP as the underlying cause.

Tagged as: care and support, east anglia, east midlands, local, north east, north west, professionals, research, south central, south west, west midlands


Online Care Survey

Are you caring for somebody with a neurological condition? If so, a team at King's College London would like your help. They have been commissioned by the Department of Health to try and find a suitable definition for the terms ‘carer' and ‘respite care'.

Tagged as: care and support, cbd, east anglia, east midlands, eire, local, north east, north wales, north west, northern ireland, professionals, scotland, south central, south east, south wales, south west, west midlands


The PSP Association's Draft Research Strategy

The PSP Association's Draft Research Strategy - Your opportunity to have your say on research

Tagged as: care and support, east anglia, east midlands, ireland, local, north east, north wales, north west, northern ireland, professionals, research, scotland, south central, south wales, south west, west midlands


NHS Choices

The NHS website (NHS Choices) now lists information about PSP and CBD.

Tagged as: care and support, cbd, east anglia, east midlands, ireland, local, north east, north wales, north west, northern ireland, professionals, scotland, south central, south east, south wales, south west, west midlands


New drug Trial for PSP

The biopharmaceutical company Noscira is conducting a clinical trial of a new drug, tideglusib, as a potential treatment for Progressive Supranuclear Palsy.

Tagged as: care and support, east anglia, east midlands, ireland, local, north east, north wales, north west, northern ireland, professionals, research, scotland, south central, south east, south wales, south west, west midlands


NIAP survey results - improving access to services in Nottinghamshire

Survey results are available from NIAP (Neurological Information and Access Partnership) aimed at improving access to services in Nottingham city and Nottinghamshire county.

Tagged as: care and support, east midlands, local, professionals


Northern Ireland Assembly Reception - Sign up Now

Rare Disease Day Reception NI Assembly.

 

Tagged as: care and support, local, northern ireland


Former Carers Wanted for Study in Liverpool

An end of life research study is being carried out at the University of Liverpool.  The study will explore the care experienced by patients in the last year of life.

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Great North Run 2010

Pre-register your interest in the world's largest half marathon.

Tagged as: , local, marathon, north, running




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