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Corninthians 1:13
And now abideth faith, hope, charity, these three; but the greatest of these is charity.

We are delighted to have The Bishop of Oxford, The Rt Rev John Pritchard and The Bishop of Ebbsfleet, The Rt Rev Andrew Burnham as current PSP Champions, committed to helping us to raise awareness of PSP in their respective Diocese.

Bishop John (PJ9916).jpgBishop John states "I am delighted to be The PSP Association's first "PSP Champion" because I was appalled to learn about Progressive Supranuclear Palsy (PSP) and its equally nasty cousin Cortico Basal Degeneration (CBD) and I wish to help. I can see that there is an urgent need to raise awareness of these devastating terminal neuro degenerative illnesses, both with relevant medical professionals and the public generally, if only to reduce the misery of mis and non-diagnosis for thousands of people. Likewise, the fact there is not only no cure but, even worse, no treatment, is in this day and age truly dreadful for both victims and their families. I shall be encouraging my parishes to support The PSP Association, in particularly during its National Awareness Week in April. I was inspired by the fact that this small, young charity is able to do so much for so many people with the equivalent, by hours worked, of only 12 full-time staff. There is still so much to be done. Jane Hardy, the charity's Chief Executive, tells me they are, in round terms, only at 5% of where they need to be if they are properly to help all the victims. Clearly, those involved with the charity, be they victims, families, researchers, medical professionals or, indeed, the tiny PSP team need our help and I hope you, like me, will provide that help in their time of need"

 

Bishop Andrew states "I was deBishop Andrew.jpgeply saddened to learn about PSP and CBD, for until the charity contacted me, I had no idea that these devastating illnesses existed. Having had the opportunity to meet with some of the Association's staff, I now understand the nature of the diseases, and how each slowly, and insidiously destroys its victims. Clearly there is a compelling need to raise awareness of PSP and CBD with not only medical professionals, but also the public in general to reduce, as a priority, the misery of mis and non diagnosis. It is for this reason that I am delighted to be able to support the Charity in its vital work."

 

If you know of any influential figures in your community who would consider championing PSP on behalf of the Association to bring this disease to the forefront of public knowledge then contact us on or email