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As PSP and CBD can affect people in very different ways, we are building a 'bank' of case studies and stories and are interested in all aspects, from diagnosis and ongoing support to later in life issues.

Real life stories help to raise awareness, support and funding and may help to find clues about causes and potential treatments for PSP and CBD.  Keeping a diary of experiences can also help when putting forward a case for statutory benefits or services.

If you are interested in providing us with a case study we have produced a guide form and questions.  Please email or call to obtain a copy.

To view individual case studies, click on the links below.

Case Studies List

Ann Dellar

Irene Sault

Gladys Favager

Ray Wiffen, CBD

Ray and Jenni Nind