The PSP Association

Anne

"Having retired from a busy local primary school where you juggle many aspects of administration from a small office with an ever open door, I soon realised I missed the many rewarding aspects of that job.  I thought I would become a volunteer locally and here I am in the PSP office enjoying contributing to for the Charity.  As always with and the many charities dependent on s, it is an uphill struggle and therefore a challenge.  I enjoy a challenge and hope one or two ideas towards raising awareness and funds will come to fruition in time to come.  It hit home recently when walking to the PSP office I met two local friends and, as we all do, we had a 'catch up' session in the street.  I explained the volunteer work I'd become involved in and it turned out that one friend had a relation who had recently died from PSP and knew how devastating the disease could be.  Exciting and challenging times ahead, but looking forward to being a part of it."

Alisoun's Story

"I became aware of The PSP Association really only back in 2006 when my husband Rob was diagnosed with PSP.  His health had been failing for some years prior to that and he was tossed about from doctor to doctor in varying spheres of medicine.  It was only when pressing for further tests that he was referred back to Dr. John Green at The Southern General Hospital in Glasgow, and it was him that finally made the diagnosis.  I joined The PSP Association sometime after that and had several conversations with nurse specialist Maggie Rose, who was the brilliant star that she is in assisting, advising and comforting. I also began to attend the Support Group Meetings in Scotland.

Before Rob died I had received all the information about the 2008 Afternoon Tea Party Idea and had decided to have one myself.  Following Rob's death on 17th March 2008 I decided to go ahead with this - probably in some way as a tribute to Rob.   It was hard to do with his death so fresh, but I gained a lot of pleasure in doing it, and it was probably that, along with the fact that I raised a very large sum of money, that got me involved with The PSP Association as a volunteer! 

I was contacted by Madeleine Quine, the Development Officer for Scotland, and I am now one of the volunteers supporting Madeleine and the work of the Association in Scotland.

I play golf at Helensburgh and The Ladies Golf Club, Troon and I am Vice Captain of Dunbartonshire & Argyll Ladies County Golf Association.  Apart from golf I curl during the winter months (great fun), I enjoy working in the garden, walking the dog and generally being active.   I find it difficult to sit down in fact!

I am lucky to have a large circle of very good and kind friends who have helped me.   Most of these friends were mutual friends of both Rob and myself.  The West of Scotland is a small place when it comes to friends.  Most of us can go back to our teenage years if not school times!"

Read more of our Volunteer Stories.