The PSP Association

The National Audit Office has published a Report which shows significant problems in neurological services across the country.

Since the introduction of a National Service Framework for Long-Term Conditions (NSF) in 2005, access to health services seems to have improved, but the quality of the care provided appears to have worsened, despite an increase in spending of 40%.

The PSP Association has always supported the aim of the NSF to "put the individual at the heart of care and provide a service that is efficient, supportive and appropriate from diagnosis to end of life", but has long recognised the shortcomings in delivery.

For this reason, the PSPA has been working to develop its own care pathway to advise patients and health professionals alike, and this will be launched in the Spring of 2012.

The pathway will include recommended best practice and guidance on problems identified by the NSF, such as the need for speedy diagnosis, helpful information, fair access and better integrated health and social services, and quality care in hospital, to ensure the best care possible for people with PSP and their carers.