Rare Disease Day 2012

Please contact your local politician to raise awareness of rare diseases on Rare Disease Day and to help ensure progress on the UK plan for rare diseases...

International Rare Disease Day will take place on 29^th February. Rare Disease UK are spearheading a campaign to get more government support for people with rarer conditions such as PSP, including a plan for rare disease by 2013

If you would like to take part, please see below instructions on how to get in touch with your local politician and template letters depending on whether you live in England, Scotland, Wales or Northern Ireland.

Please remember, when adapting the template letters delete the instruction e.g. "[Insert name of MP]" and remember to change the red font colour back to black.

Rare Disease UK would be interested in hearing if you get a response from your politician as this helps them to identify who has an interest in rare diseases which aids them in their political campaigning work.

If you live in England...

Please contact your local MP to ask him/her to write to the Secretary of State for Health, Andrew Lansley.

Download template letter for England

You can contact your MP by post or by email. If you are not sure who your local MP is, or if you would like to look up their contact details to email them, you can find this online at:

An easy way to contact your MP is through http://www.writetothem.com/

If you have any questions, you are having difficulty finding out who your MP is, or would like some further assistance, please contact Stephen Nutt on or .

If you live in Scotland...

Please contact your MSPs to ask them to write to the Cabinet Secretary for Health and Wellbeing, Nicola Sturgeon MSP.

Download template letter for Scotland

You can contact your MSPs by post or by email. If you are not sure who your local MSPs are, or if you would like to look up their contact details to email them, you can find this online at:
http://www.scottish.parliament.uk/msp/membersPages/MSPAddressPostcodeFinder.htm

Remember you have 8 MSPs in total, 1 constituency MSP and 7 regional MSPs. If possible, could you send/email the letter to each?

An easy way to email all of your MSPs in one go is through http://www.writetothem.com/ - select "write to all your MSPs" after putting in your postcode.

If you have any questions, you are having difficulty finding out who your MSPs are, or would like some further assistance, please contact Natalie Frankish on or .

 

If you live in Wales...

Please contact your Assembly Members to ask them to write to the Minister for Health and Social Services, Lesley Griffiths AM.

Download template letter for Wales

You can contact your AMs by post or by email. If you are not sure who your local AMs are, or if you would like to look up their contact details to email them, you can find this online at:
http://www.assemblywales.org/memhome.htm

Remember you have 5 AMs in total, 1 constituency AM and 4 regional AMs. If possible, could you send/email the letter to each?

An easy way to email all of your AMs in one go is through http://www.writetothem.com/ - select "write to all your AMs" after putting in your postcode.

If you have any questions, you are having difficulty finding out who your AMs are, or would like some further assistance, please contact Rhian Morgan on or 0.

 

If you live in Northern Ireland...

Please contact your MLAs to ask them to attend the Rare Disease Day event to launch the Northern Ireland Rare Disease Partnership and to contact the Minister for Health, Social Services and Public Safety, Edwin Poots MLA.

Download template letter for Northern Ireland

You can contact your MLAs by post or by email. If you are not sure who your local MLAs are, or if you would like to look up their contact details to email them, you can find this online at:

 

Remember there are 6 MLAs representing each constituency. If possible, could you send/email the letter to each?

An easy way to email all of your MLAs in one go is through http://www.writetothem.com/ - select "write to all your MLAs" after putting in your postcode.

 

If you have any questions, you are having difficulty finding out who your MLAs are, or would like some further assistance, please contact Stephen Nutt on or . You can also visit their website at http://www.raredisease.org.uk/rare_disease_day_2011.htm