Support For You...
Whether you have PSP or CBD, are a carer or health professional, we have a range of services to support you. As soon as someone with PSP or a carer joins us, they are linked to a PSP Adviser, sent information about PSP and details of local support groups.
Our services include:
• Specialist Care Advisers who act as advocates for people with PSP, advising them on the services and support that are available and helping to make sure they receive them as they are needed;
• Telephone Helpline & Information Service available on to offer advice and support to people with PSP, CBD, their families and carers and a professional advice line for health and social care professionals;
• Local Support Groups - a network of more than 40 groups across the UK - which provide an opportunity to meet other cares and family members for encouragement and advice
• Vision Aids - we supply free prism glasses as an aid for gaze problems
• Online Support - keep in touch via our virtual network
• Membership - Membership is free in the UK or Europe to people with PSP or CBD or their carers; otherwise £10 per year.
Also following the largest ever survey of the experiences of people with PSP, carried out in 2011, the PSP Association is introducing a number of new services soon including:
• Trained Volunteer Befrienders who will lend a trained listening ear to people in their own homes, signposting to local services and flagging up any problems or complications to the SCAs;
• A Patient Passport which will be a detailed record of the care the person with PSP has received and when to be held by the PSP and the patient or family - mapping progress along the Care Pathway for PSP