Caring for someone with PSP or CBD can be demanding. Whether you have just started out on this journey or have already been caring for some time, if you are to carry on caring, taking care of yourself is important too.
We recommend that, if you haven't already, you . We will send you the Carers' Information Pack full of practical tips about supporting someone with PSP or CBD, and link you with the relevant nurse specialist for whenever you need further support or advice.
Talking with the nurse can be helpful in many practical ways. For example, making sure you build in time to rest, or giving your loved one the space they need too, as well as giving them the extra time they need to talk.
I only called a few times, but just knowing the nurse was there made all the difference" - former carer.
It is also important to let your GP know that you are a carer - this can also help with practical aspects such as speeding up appointments and advice by a physiotherapist on lifting without injuring yourself.
Establish a network of people to support you - this could include linking in with PSP local networks and support groups. Find out more about what is happening in your local region.
You may be entitled to the Carers Allowance and Carers Premium, and everyone in a caring role is entitled to a Carers Assessment, to discuss with Social Services the help needed with caring and to maintain your own health and wellbeing.
For more information, download our leaflets ‘Caring for the Carer' and ‘Work, Benefits and Finance'.