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Do you or someone you know in NI have a Rare Disease?

Do you or someone you know, who lives in Northern Ireland, have a Rare Disease?

If so, the Patient and Client Council would like to hear from you.

The Patient and Client Council, along with the Northern Ireland Rare Disease Partnership are doing a survey to find out about your experience of diagnosis.

You can fill out the questionnaire online by either going clicking on the link https://www.surveymonkey.com/s/raredisease

OR

by visitng the Patient and Client Council website www.patientclientcouncil.hscni.net and follow the link

OR

you can contact Sarah or Richard direct on telephone

 

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