Though based in the UK, The PSP Association supports people with PSP or CBD in more than 35 countries.
We link up with other PSP Associations or contact groups around the world that may be nearer to home:
Many of our services are accessible beyond the UK or Ireland. For example, we could provide:
- A telephone or e-mail link to a PSP Nurse Specialist to advise you if you have PSP ro CBD or are caring for someone who has.
- A comprehensive Carers' Information Pack, giving practical advice to assist with caring. The core of the information is how best to manage the symptoms and other problems that may arise as PSP or CBD progresses.
- A Guide to PSP and CBD for Health Professionals which provides an overview of the conditions and the support that may be needed.
- A copy of PSP Matters, The PSP Association's magazine published three times a year, which provides a summary of worldwide research into PSP and articles on practical care issues.
Upon request, we would also provide:
- Access to over 30 Support Groups throughout the UK and Ireland. If you have UK-based family or friends, they are most welcome to attend. If you provide a name and address, we will send them invitations.
- Contact with any other PSP Association members who live in your country.
- Direct contact to your doctor or any other healthcare professionals, upon your request, to offer any further information that they might need.
- An invitation to our annual Symposium for carers and therapists, held in the UK, that provides a full day of medical briefings and updates on care issues.
We also have the largest database of people with PSP in the world, so could contact you if there are opportunities to take part in research (depending on the criteria).
Joining us will also strengthen our global voice to raise awareness.