The PSP Association

Julie Cook, a freelance journalist who writes for the health pages of women's magazines such as Bella and Women's Own, has contacted us via Rare Disease UK. Julia has an interest in rare diseases and hopes to write an article on a family affected by a condition such as PSP or CBD, to help raise awareness. The article could include talking about how your lives are affected, what support you get, and what more could be done to help. The magazines Julie writes for have a policy of running a copy of the article past interviewees before going to print, to ensure that they are happy with it, and interviewees would be paid a fee if their article was printed. If you are interested in taking part, please contact Julie at with a brief overview of your experience and a contact telephone number. If Julie thinks that you may be appropriate for the article, she will be in touch to arrange a telephone interview at your convenience.