Empowering Information
We are committed to providing helpful information from our specialist team and other invited experts. This includes:
The new updated Carer's Information Pack is now available online. This pack is designed to help you manage PSP or CBD, particularly if you are caring for someone with either condition. We hope this will answers many of the questions you may have, whether arranging financial support, managing the symptoms as and if they arise, or where to get help and advice, including support for you as a carer. The new pack comes in four manageable sections to make it easier to find the information you need and includes more web information and contact details to signpost you to other handy sources of support.
Living with PSP or CBD - a handy booklet giving practical advice and contact information for anyone newly diagnosed.
Getting About Leaflet & DVLA CN1 Form
Caring for the Carers Leaflet
Work, Benefits and Finance Leaflet
PSP Bibliography
CBD Bibliography
PSP Matters - our members' magazine, with stories, features, news and advice.
Guides - information for healthcare professionals, including A Guide to PSP and CBD, our guides on PSP and CBD for GPs, Community Nurses and Occupational Therapists
Hard copies can be ordered via or 01327 322415.Many of our publications can be downloaded free of charge.
We also work with other organizations to ensure that information about PSP and CBD are included wherever appropriate, such as the NHS Choices website, www.nhs.uk.
'Under the Magnolia Tree' - a soft food cookbook for people with swallowing difficulties. Features recipes from top chefs. Spiral bound paperback. Available through our online shop.